We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine

Name: We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine
Price: 17.99 USD
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Rating: 4.7 (21 reviews)

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Book Synopsis: A Pulitzer Prize–winning reporter’s moving narrative of a group of patient advocates who are revolutionizing the way medical research is conducted. For more than half a century, medical advances have been driven by investigators launching experiments inside labs. Science is often conducted in isolation and geared toward the long view. This is the story of a group of people who tried to force the lab doors open: parents whose children had been diagnosed with a rare and fatal genetic condition known as Niemann-Pick disease type C. The disease prevents cells from processing cholesterol, which leads to the progressive loss of the brain’s and the body’s ability to function. Recognizing that there would never be a treatment in time to save their children if things stayed the same, the parents set up a collaboration with researchers and doctors in search of a cure.

Reconciling different views of science took work. The parents, doctors, and researchers didn’t always agree—among themselves or with each other. But together they endeavored to accelerate the development of new drugs. The parents became citizen scientists, identifying promising new treatments and helping devise experiments. They recorded data about the children and co-authored scientific papers sharing findings. They engaged directly with the FDA at each step of the drug approval process. Along the way, they advanced the radical idea that science must belong to us all.

Amy Dockser Marcus shows what happens when a community joins forces with doctors and researchers to try to save children’s lives. Their extraordinary social experiment reveals new pathways for treating disease and conducting research. Science may be forever changed.

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Are you ready to discover a truly revolutionary approach to medical research? Introducing "We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine" - a Pulitzer Prize-winning reporter's captivating narrative that sheds light on a group of patient advocates who are transforming the way we conduct medical investigations.

For too long, science has been confined to laboratories, isolated from the real world and focused solely on long-term goals. But this groundbreaking book tells the inspiring story of parents whose children were diagnosed with the rare and fatal genetic condition Niemann-Pick disease type C. Faced with the prospect of losing their loved ones, these extraordinary parents refused to accept the status quo.

Through their determination and collaboration with researchers and doctors, they set out on an incredible journey to find a cure. In their quest to save their children, they became citizen scientists, identifying promising treatments and contributing to scientific papers. Their dedication even led them to engage directly with the FDA, making sure their voices were heard every step of the way.

Amy Dockser Marcus, a Pulitzer Prize-winning author, vividly captures the spirit of this remarkable community endeavor. The remarkable social experiment showcased in "We the Scientists" reveals new possibilities for treating diseases and conducting research. This book has the power to transform the future of science itself.

If you are passionate about medical advancements and determined to make a difference, "We the Scientists" is a must-read. Join the movement that believes science must belong to us all. Experience the transformation this community achieved and be inspired to take action. Get your copy today and be a part of the revolution!

Click here to order your copy of "We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine" now!

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